Here is a E-mail that my mom sent out a bit ago..
Hi All,
I just wanted to give everyone an update on Jordan’s recent appointments. As you know, she was hospitalized approximately 4 weeks ago for an exacerbation, during her spring break. The week after discharge, she had some upper respiratory stuff going on and did not feel much better following 2 weeks of IV antibiotics, so they extended the treatment for another week. When Jordan returned to the CF clinic last Wednesday, her PFT’s were 81%, no improvement from discharge. It was decided that she would continue IV antibiotics for another week and one of her medications were changed. Dr. Mogayzel also decided that a bronchoscopy should be completed for therapeutic and diagnostic purposes. During the bronchoscopy, Dr. Mogayzel was able to get irrigate and clean out a lot of the mucous in the lungs. The right upper lobe was the worst and the mucous was more solidified. While performing the bronchoscopy, Dr. Mogayzel noted some nodules on Jordan’s trachea. The bronch really took a toll on Jordan this time. She was really worn out and was very short of breath for most of the weekend. Jordan’s ENT doctor was made aware of the nodules and he recommended a CT scan. Today, the CT scan was completed to evaluate the nodules. The radiologist’s report, notes the nodules on her last CT scan from 2011; however, Dr. Mogayzel did not note these nodules on the last bronchoscopy in 2011. The CT scan and pictures from the bronchoscopy will be shown to the ENT doctor on Friday, as he is currently out of the country. Jordan returned to the CF clinic today for re-evaluation. Her PFT’s were down to 62%, which was surprising since she has been on IV antibiotics for 4 1/2 weeks with increased treatments. It was decided the the IV antibiotics would be discontinued as of today and an oral antibiotic would be started. She will also start Cayston nebs and keep up with the other nebs and the Vest. They introduced a new airway clearance device, Therapep (http://www.smiths-medical.com/landing-pages/promotions/smi/respiratory/therapep.html), that Jordan will use, as well. This weekend is the senior prom, so that played a bit of a role in the decisions made for Jordan’s treatments this week. Thankfully the CF team understands that living life is just as important as the treatments that Jordan receives. So now, Jordan will return to the CF clinic next Wednesday for PFT’s again and to decide how to proceed from there.
Well, I didn’t quite make it to Wednesday. Prom was absolutely amazing! It was really everything I imagined & more, I just can’t believe it is already over! Sunday was definitely a recovery day, I was so wiped out! Monday morning when I woke up for school, I knew as soon as I woke up it wasn’t good. I had a fever and slept literally all day, and the next day! I told mom to just call Clinic on Tuesday because I knew that I was going to get admitted so why not get a day on them! I still haven’t done PFT’s but according to the X-ray the took in the ER looks like some Pneumonia in my right lung. I sure am feeling that Pneumonia, for sure!!! Hacking up my lungs left and right, high fevers, and all over body aches are killing me. Doesn’t CF know that I graduate in a month from yesterday?! Let’s go man! Anyways, just doing the normal ole’ tune up to get me out of here soon! I anticipate to be here over the weekend, visitors are welcome! 
Anyways the walk is in less then two weeks.. Here is my 2012 Video!!!
Also, CLICK HERE TO DONATE!
Thanks for all your love & support!!
xoxo, Jay! <3
I was torn. Even though I knew I needed another week of iv’s. I return to hopkins again this Wednesday. We will see how it goes. Not looking good, had a rough weekend. But I am determined to feel better and off IVs for prom, May 5th. I have a hott dress to rock and shoes too! 
Thanks for all the support and prayers, y’all are truly amazing when it comes to that stuff!! 
Haha!!
Mrs.Susan, and her husband donated their services for us last, so thank you very much!